Hallinan D, Bernier A, Cambon-Thomsen A, Crawley FP, Dimitrova D, Medeiros CB, Nilsonne G, Parker S, Pickering B, Rennes S
Eur J Hum Genet - (-) - [2021-05-06; online 2021-05-06]
On 16 July 2020, the Court of Justice of the European Union issued their decision in the Schrems II case concerning Facebook's transfers of personal data from the EU to the US. The decision may have significant effects on the legitimate transfer of personal data for health research purposes from the EU. This article aims: (i) to outline the consequences of the Schrems II decision for the sharing of personal data for health research between the EU and third countries, particularly in the context of the COVID-19 pandemic; and, (ii) to consider certain options available to address the consequences of the decision and to facilitate international data exchange for health research moving forward.